Vietnam Reports 100 Rare Diseases, 58% Affecting Children
Vietnam has recorded around 100 rare diseases, with 58% of cases affecting children and 30% of those under five succumbing to these conditions, local media cited the latest data from a scientific discussion on improving rare disease management in the country.
Participants highlighted that diagnosing and treating rare diseases in Vietnam is difficult due to a lack of information, specialized treatments, and high costs. Despite these challenges, progress has been made in conditions such as hemophilia and malignant lymphoma, where improvements in diagnosis and access to treatment have led to better outcomes for patients.
Public awareness of rare diseases has grown in recent years and advancements in science have improved treatment capabilities and drug accessibility.
Earlier on Rare Disease Day on February 29, the Ministry of Health issued guidelines for the diagnosis and treatment of hemophilia, which enhanced care and expanded treatment options at local health facilities, reducing joint damage in patients.